There will be a FEAST
The name chosen for our new parent organization is:
FEAST:
Family Empowerment and Support for Treating Eating Disorders
Mission: FEAST connects parents and caregivers of eating disorder patients with each other to share information and resources and facilitates parent activism to reduce the suffering and stigma connected with eating disorders.
(May I have your feedback, in the comments or by email, before the board meets on Monday, the 31st?)
FEAST:
Family Empowerment and Support for Treating Eating Disorders
Mission: FEAST connects parents and caregivers of eating disorder patients with each other to share information and resources and facilitates parent activism to reduce the suffering and stigma connected with eating disorders.
(May I have your feedback, in the comments or by email, before the board meets on Monday, the 31st?)
I LOVE IT!
ReplyDeleteDidn't see it coming either.
genius! (i almost typed "jeanius"...hahaha i've been spending too much time on the NEDA site, apparently ;)
ReplyDeletehow can people get involved?
Details being hammered out - stay tuned!
ReplyDeleteLaura,
ReplyDeletethis is kind of off-topic but I need some help with a question.
the parent of an adolescent autistic boy --- had lots of therapy and is now mainstreamed somewhat----wrote recently on an email discussion list that his son seems to be developing bulimia.
the parents are seeking an ED professional who has some understanding of ED's in special needs children. they have an appointment with a specialist but it is not till June and they really need help.
you can contact me at kristina@b5media---hope you do not mind me asking this here but parents are the best resources.
looking forward to hearing more about FEAST,
Kristina
autismvox.com
Kristina,
ReplyDeleteThis is a really good question and I wish I knew of someone who specializes in both - because you absolutely need that. Autism isn't something you want just anyone advising you on and ED absolutely isn't either. With ED behaviors, though, the intervention must be urgent. Every symptomatic day worsens the prognosis. You need a specialist, and not just a specialist but one that is both current on the literature and experienced.
Let me say this: distance and price cannot be determinants in this. It has to be expertise. I would start with clinicians who are members of the Academy for Eating Disorders (www.aedweb.org)and look within that group for people with autism expertise.
Let me know if I can be of any help: Laura@eatingwithyouranorexic.com - and please give the family my best wishes.
This sounds like a great organization. Parents need all the support they can get.
ReplyDeleteWe just wrote a blog entry on the signs of eating disorders and tips for parents, and I thought it would be a good resource for your readers. Feel free to link to our blog if you think it's appropriate.
http://eatingdisorder.org/blog/?p=37
Thanks,
The Center for Eating Disorders at Sheppard Pratt